When I was trying so hard to continue working, I would get up early enough to get ready with time left to take a short nap in order to have the necessary energy just to get to work. Most mornings that plan didn't work too well because I still had the pain from the day before. The pain never went away. The severity of the pain (Level 7 or 8 that eventually became Levels 9 and 10) was such that I would lean on the kitchen counter, trying to find a position that would ease the pain enough that I didn't throw up just to get to the car to leave home.
Bill's hours are 9am - 6pm. I hate that he gets off so late. it takes away from our together time and causes us to stay up too late squeezing in a few more minutes. If his start time, was earlier I wouldn't be able to get up with him. As long as I'm not in a flare, I'm able to get up around 8 or 8:15 to have some time with him. He's usually already had breakfast but I enjoy making his lunch and pretending that I'm able to be a good wife. God blessed me with a wonderful, loving, caring, God fearing husband. Without him, I'm not sure where I would be today. What I do know is that my quality of life would be much less. He never complains about having to take me to the doctor because I can't understand or remember what the doctor says. He doesn't complain when I'm not able to do something we had planned or when he picks up my nine (9) prescriptions at the pharmacy.
By around 11:30 this morning I had only been up for three hours. My pain was awful and didn't seem to have any interest in going away despite the meds. Today's pain started at a Level 6. (You simply cannot ignore your pain for even a few minutes. Prescription pain medications provide you with limited functioning abilities). Now it's down to a Level 5, (You can't ignore this pain for more than an hour, even with OTC Medications. You cut back of all activities except the most important ones. Work is possible, but just barely.)
I had much more to do than I was able to accomplish. It was all simple things - make a spreadsheet my meds, fill out a form for my LTD insurance company, make a list of things I'd like to blog about on my Apple Creek Cove blog (I'll talk more about it later) make an appointment for physical therapy and a Physical Abilities and Limitations Evaluation. I wanted to sew. Sewing calms my nerves and gives me a few minutes of feeling like I can still accomplish something. Did you noticed four of the six things on my to-do list were illness related. I'm beginning to believe that being sick with a chronic illness is a job in itself. :-)
P.S. I just noticed that this posted with the time I started this morning. It took me until 6:15 to finish with taking breaks from sitting, eating lunch, and taking a short nap. :-)