tag:blogger.com,1999:blog-4803932218255822336.post836976739912755414..comments2023-06-13T08:28:17.439-05:00Comments on My Life with Fibromyalgia Pain: September 5, 2010 - Pain Level 8Cynthiahttp://www.blogger.com/profile/06934523372179103045noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-4803932218255822336.post-31005594768671659652015-03-08T20:16:37.855-05:002015-03-08T20:16:37.855-05:00Yup. This is where I am now, and I am often accuse...Yup. This is where I am now, and I am often accused as just being lazy. To be honest, I have all my life been somewhat like a horse, looking for the path of least resistance....yeah, had to give up on my horses, too, a few years ago, after hoping for two years I'd get better!....anyhow, not lazy, just overwhelmed by fatigue and constant pain in varying levels day to day. Still working, but it's a factory job that is 8 hours a day, two 10 min breaks, half hour lunch sitting, which offers little relief, no concessions available for my inabilities, and punishment for too many sick days or Dr. appointments. Oh, yeah-- I have to run to the bathroom after each hr to hr and a half JUST TO SIT DOWN and try to rest/alleviate the pain. I can't quit, because we need my meager income to supplement and pay bills! However, I've been trying for a year to find an office job with opportunity to alternate sitting/standing. I'm only 51, and have only ever done retail for now-- but jobs aren't growing on trees, and part time isn't going to cut it. . So I'm starting my SSDI process now. It may not be the best income, but I feel I need the rest and time to heal, and hopefully get my photography business off the ground, and get off SSDI and do the work I love that doesn't kill me! We shall see....<br /><br />My husband, being the tough guy he is, thinks I'm overreacting to pain. But this isn't the case. Depression since age 11, dx'd with bipolar II several years ago, arthritis since age 36, plantar fasciitis the last 5 years (and flat feet all my life!)....chronic sinusitis, chronic periodontal disease, porous bones, anxiety....just so much. And gradually stealing my life and energy from me. And little support from loved ones who don't understand. At least I have a great nurse practioner, who has treated me for so long, taken copious notes on my records, and gets me. Now I think it may be time to add a rheumy or pain specialist, just in case SS needs more info. <br /><br />Sorry, I know your blog post is old, I did need to vent though. I've read a lot of your posts, and I can so relate. At the same time, your faith and strength encourages me! I know God has something in mind, I'm where I need to be for right now. Wish I knew why, but I trust Him. It's just so hard to keep pushing on, most days. Thanks for your blog, I hope you are well and happy, I'll be reading some more! (-:Anonymoushttps://www.blogger.com/profile/00900711969854560721noreply@blogger.comtag:blogger.com,1999:blog-4803932218255822336.post-56748119653673022152015-03-08T20:16:11.923-05:002015-03-08T20:16:11.923-05:00Yup. This is where I am now, and I am often accuse...Yup. This is where I am now, and I am often accused as just being lazy. To be honest, I have all my life been somewhat like a horse, looking for the path of least resistance....yeah, had to give up on my horses, too, a few years ago, after hoping for two years I'd get better!....anyhow, not lazy, just overwhelmed by fatigue and constant pain in varying levels day to day. Still working, but it's a factory job that is 8 hours a day, two 10 min breaks, half hour lunch sitting, which offers little relief, no concessions available for my inabilities, and punishment for too many sick days or Dr. appointments. Oh, yeah-- I have to run to the bathroom after each hr to hr and a half JUST TO SIT DOWN and try to rest/alleviate the pain. I can't quit, because we need my meager income to supplement and pay bills! However, I've been trying for a year to find an office job with opportunity to alternate sitting/standing. I'm only 51, and have only ever done retail for now-- but jobs aren't growing on trees, and part time isn't going to cut it. . So I'm starting my SSDI process now. It may not be the best income, but I feel I need the rest and time to heal, and hopefully get my photography business off the ground, and get off SSDI and do the work I love that doesn't kill me! We shall see....<br /><br />My husband, being the tough guy he is, thinks I'm overreacting to pain. But this isn't the case. Depression since age 11, dx'd with bipolar II several years ago, arthritis since age 36, plantar fasciitis the last 5 years (and flat feet all my life!)....chronic sinusitis, chronic periodontal disease, porous bones, anxiety....just so much. And gradually stealing my life and energy from me. And little support from loved ones who don't understand. At least I have a great nurse practioner, who has treated me for so long, taken copious notes on my records, and gets me. Now I think it may be time to add a rheumy or pain specialist, just in case SS needs more info. <br /><br />Sorry, I know your blog post is old, I did need to vent though. I've read a lot of your posts, and I can so relate. At the same time, your faith and strength encourages me! I know God has something in mind, I'm where I need to be for right now. Wish I knew why, but I trust Him. It's just so hard to keep pushing on, most days. Thanks for your blog, I hope you are well and happy, I'll be reading some more! (-:Anonymoushttps://www.blogger.com/profile/00900711969854560721noreply@blogger.com